We’ve had much conversation about many things, like what means the most to us. For me, that’s simple, Home. Being home together as an I’m Nicer than my face looks shirt family, no particular plans, just home. The other is we want Liam and Levi to be able to spend much time together. Many tough questions we’ve had to answer.

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Yesterday if we chose to do no treatments then we are looking at weeks to I’m Nicer than my face looks shirt months for Levi, and if we did continue with any form of treatments possibly 4 months to 12 months. we were awaken around 6 am to Levi’s breathing not going well, his hemoglobin or blood level dropped from 8.0 yesterday morning down to 6.6 this morning.

Such a huge drop in 24 hrs! His blood pressure was low, breathing tough, and other things going on. We have I’m Nicer than my face looks shirt been on the edge of our seats all day, watching as Levi struggled to stand at times, he’s been crouching our holding his tummy as it has become so distended more and more throughout the day to where it literally looks like a balloon.